Blogs are used for many reasons. This one started after we moved to North Carolina, and I wanted to share pictures of our life to everyone else we know who lives in Georgia. Plus I thought blogs were pretty and fun to design with all the pretty backgrounds!
So far this blog has shown how “perfect” our life is being newly married, with a new home, up here in North Carolina. But to continue to only show that side of our life would be completely denying other people the opportunity to see God at work through our experience with a precious heart – John’s heart.
John’s heart got sick about six years ago through a virus. I wasn’t around then, but I wish I had been. The story has been told to me like this: A virus attacked his body just like viruses attack every one’s body. The only difference with this virus is that it was persistent. As John’s antibodies began to fight the virus away they got confused and began attacking his heart thinking that is was an enemy. Now the damage is irreversible – well, by medical standards, but of course not by God’s. We pray for a miracle everyday, if God chooses to give us one. In the meantime we have to live with the heart John has, which for me is precious no matter how sick it is.
Over the past six years John has almost lost the battle with his heart. He began an evaluation for a heart transplant, but started getting better after being admitted into the ICU, so they didn’t continue with putting him on a list. He also had a defibrillator inserted into his chest.
That’s when I came into the picture. When John and I met he was about three years into this sickness and on his second defibrillator. He looked “normal” and acted “normal”. I don’t really remember thinking that anything was different about the things he could or couldn’t do. Now I know that God was protecting me from the truth for that time. I wasn’t mature enough for it yet, and he was going to have to work on me, which he did as I fell in love with John and begin to see my special place in this story.
Life has been just going along like you would typically expect for the past couple of years. Of course we have been conscious of this disease we are living with, but no more than a mere consciousness of it. And then things began to change.
For the past few months John has not felt well, and that has led us to where we are now – facing a heart transplant.
So as I think about what to post in this blog, it seems deceitful to not show what our life is truly like at this time. I know that God is using this season of our lives for a very special purpose. I already see evidence of that. And I guess I feel like I want to capture all the miracles, glory, and goodness that are about to take place in our lives over the next several years. John and I still have hope and faith for a baby someday, and I think about sharing this story with that miracle child. It is also good therapy for me as my mind races constantly of so many things.
So here is the legacy of God’s work in our lives – and one precious heart the day things begin to change