Yesterday was a good day. Today has been a hard day. John came home exhausted. He hardly slept last night. Every day at around six o’clock the same routine starts. John becomes very uncomfortable. He has restless leg, some minor pain, and breathes heavier. He just can’t get comfortable. This continues into the night with him getting up at least once if not more. It is so hard to watch.
We have not heard back from Duke yet, so I called today. I just think something has got to give. It was right before five, so the nurse had already left, but the person I talked to said that it takes weeks to set up the evaluation for the heart transplant. She said that John is going to be very busy those three days. We are trying to wait for the evaluation before we go back to the doctor because we know there’s not much John’s new doctor at Duke can do until he has more information. On the other hand, John can’t keep going like he is. Each day is getting harder. What I would give to take it from him.